Little Lera Smirnova from Khabarovsk quick gut syndrome. The woman was born with a vice of intestinal improvement. She underwent three complicated operations, after which she preserved solely 10 centimeters of the small gut and 45 centimeters of the thick. That is catastrophically little for the conventional functioning of the gut. The infant doesn’t soak up odd kids’s meals, she must be fed by Vienna. However the price of particular intravenous meals for six months and consumables which are required to introduce it’s greater than 2 million rubles. For the mother and father of the kid, the quantity is unrealistic.
Lera stopped recognizing her mom after the third operation. “What would you like, two anesthesia in a row,” the docs stated. They usually suggested to convey the woman’s favourite toys. Nevertheless, neither dolls, nor plush bears, nor household photographs of Lera responded.
To outlive, little Lera wants costly intravenous vitamin. Then she will be able to deal with it, however now she actually wants your assist.
In December final yr, the woman was operated on for the third time: they eliminated a lot of the intestines and glued two baggage to the physique with a plaster: one to take away urine, the opposite for feces. A pipe was inserted into the throat. And in order that Lera didn’t determine to drag all of it out, her legs and arms tied to the mattress. Katya couldn’t look with out tears on the torment of her daughter.
Photograph: Rusfond
“I dreamed about my household and youngster all my life,” she admits. – On the age of 11 she was within the orphanage. And on the age of 15 she went to work. There was nobody to assist me: dad died a very long time in the past, and my mom was less than me. I used to be left fully alone on this world.
A buddy launched Katya to Katya. Vasily labored as a bulldozer driver on a shift schedule, for months he was not at residence. That they had been ready for the primary youngster for six years.
Lera was born with good weight and top, with dad’s eyes. From the maternity hospital, mom and daughter had been discharged on the fourth day. And at residence, the crumbs after feeding started vomiting with a fountain. She was despatched to the perinatal heart of Khabarovsk. It turned out that the kid has a narrowing of the duodenum, an pressing operation is required.
“Surgeons eliminated the impassable a part of the gut,” Katya recollects. “For 2 weeks I got here to my daughter in intensive care, stroked my head and stated:“ Don’t be afraid, you aren’t alone, I’m with you. ” After a month and a half, she was discharged residence, we started an nearly regular life.
The primary phrase that Lera stated was “mom”. Mother and father started to look intently on the dance sections. Dad believed that Lera could be extra appropriate for sports activities dances – she could be very lively and stressed. And in a yr, mother and pa offered her a present – sister Eve.
Photograph: Rusfond
“Lera was not very delighted with such a present, jealous terribly,” Katya smiles. – I used to be for a very long time with my daughters alone. In fact, I had it arduous, however on the identical time I used to be joyful: we’ve two stunning daughters. After they develop up, they are going to assist one another.
In December final yr, Lera immediately turned dangerous. She grabbed her abdomen and started to cry heartily. On an ambulance she was taken to the hospital.
“It was a nightmare in actuality,” Katya recollects. – Lera was recognized with intestinal inversion. However the operation was accomplished solely the following morning, when intestinal necrosis has already begun. I needed to take away two -thirds of the small gut without delay. And the following day, thrombosis started on the daughter, after which she was reduce off the remainder of the small gut and captured a part of the collapse. Through the second operation, Lerus was warmed with heating pads and burned the pores and skin on the left leg and a part of the buttock.
The physician informed me that the possibilities of surviving 50 to 50 to 50 to 50. I went loopy and torn between the hospital and the home the place a 5 -month Eve was ready for me
For greater than a month, the docs tried to ascertain meals to Lera. However the mixtures weren’t absorbed, the woman rushed. In the long run, native docs turned to colleagues from the capital’s hospital named after Filatov for assist.
In January, Leroux and his mom on a daily airplane, accompanied by a brigade of docs, had been transferred to Moscow to the Pediatrics of the Filatovsky hospital.
Photograph: Rusfond
Right here the child was handled by wounds from burns, now solely scars remained from them. However most significantly, they chose nutritious mixtures and intravenous vitamin, which it receives 20 hours a day. Lera was step by step getting stronger, started to stand up. In keeping with Katya, Moscow docs returned his daughter to life.
She likes to play with plastic syringes with out needles, which she lays out in jars – she has a lot these syringes that there’s nowhere so as to add
Lera is allowed to exit into the hall, and when the climate is nice, even exit for half an hour to the road.
Medical doctors are prepared to jot down out the child residence, however solely provided that she might be supplied with parenteral vitamin, on which her life relies upon. Now the hospital is supplied by the vitamin, however after discharge it must be purchased by yourself.
“Per week in the past we had an awesome pleasure,” Katya smiles, “my daughter started to acknowledge me.” I noticed after sleep and laughed. Now I consider that all the things might be advantageous with us.
Photograph: Rusfond
Lera was recognized with an innate vice of intestinal improvement, which precipitated its obstruction, and later the spell. The woman underwent numerous operations, I needed to take away nearly the complete small gut. Subsequently, now the child can not soak up odd meals, she is important for a particular medical vitamin, which is run intravenously. That is the one manner Lera can develop and develop
The price of intravenous meals for six months and consumables for its introduction is 2,277,819 rubles.
100,000 rubles contributed to Sinaps Telecom LLC.
533 461 rubles have already been collected by readers of rbc.ru, vesti.ru and rusfond.ru.
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